A lesson in terminology. November 10, 2008
Posted by speakingaut in advocacy, language, medical, sensory integration dysfunction.Tags: autism, health, neurodiversity
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When a neurotypical (not just non-autistic, but completely neurotypical) person has asthma, he or she is asthmatic.
When an autistic person has asthma, it’s a comorbidity.
When a neurotypical person complains of pain, it’s probably a symptom of a disease.
When an autistic person complains of pain, it’s a because he or she is autistic, and nothing more.
When a neurotypical person wants to be left alone, he or she wants to be left alone.
When an autistic person wants to be left alone, he or she is antisocial.
What’s wrong with this picture?
(Disclaimer: I know these don’t hold 100% true, but this is an exercise in how profoundly a single diagnosis can change society’s view of a person, so bear with me.)
Me zero, big bad world one. November 6, 2008
Posted by speakingaut in advocacy, outside looking in.Tags: autism, despair, employment, hope
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(Warning: foul language ahead. Not a lot of it, but it’s there.)
I have had it up to here with being forced to hide a vital part of myself in hopes of finding employment. Especially since it doesn’t work.
I am sick of continually being told how much people would love to hire me, except I’m “just not a good fit.” (At least I’m in good company; that’s the excuse companies use on anyone when they don’t have a legitimate, non-illegal reason for not hiring anyone who’s visibly different.)
Perhaps more importantly, I’m at the point where I’m mostly sure it is just me; that I’m just not going to get hired for anything full-time or permanent, no matter what I do; that even if I keep trying, I may as well never actually hope to amount to anything; that I may as well go from job to job to minimum-wage job like so many autistic spectrum people before me have done. I may as well accept that my best option for health care is “don’t get sick.” (One perk: I hear the monthly premiums are low on that plan.)
And you know why I’m not planning to give in? Why I’m going to cry myself out and then pull myself right back up?
I’m doing it for you.
I don’t want to sound like a martyr by saying this, because that’s certainly not how I see myself. But if — WHEN — I get my career started, it’ll be that much easier for the next autistic person to apply for a job there. People will get to know me and realize that I am just as much a human being as they are, and with luck and hope, they will carry that knowledge on in life.
The Law of Unintended Consequences applies here as well, but in a good way. If things change for autistic people, the world will be easier for other non-neurotypicals. I live for the day when neurodiversity in all its forms (infinite neurodiversity in infinite neurocombinations? Nah…) is so commonplace that when somebody asks “So, what about that Alice person? Isn’t she weird?” and the standard reply is “No, she’s not weird. She’s just Alice.”
It’s just not fucking fair that any group of people anywhere has to prove its humanity at all. Ever. I’m going to say this once, and I’m going to say it clearly: FUCK. THAT. SHIT.
My writing this likely isn’t going to change anyone’s attitudes, aside from my own (I feel better already), but with hope, my existence will.
Single-Sentence Saturday comes without warning or context. October 25, 2008
Posted by speakingaut in outside looking in, single sentence saturday.Tags: autism
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Sometimes I wish I could read minds, but then I realize that it would just mean having one more sense to manage.
It’s listmaking season. October 7, 2008
Posted by speakingaut in outside looking in.Tags: autism, life skills, living
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Things that, according to people who taught me to do them, I don’t do correctly:
- Walk
- Hold a pencil
- Vacuum the floor
- Take out the trash
- Change diapers
- Crochet
- Type
But:
- I get around unassisted, and I can keep up with people a foot and a half taller than I am
- My handwriting is perfectly legible as long as I’m paying attention
- My floor is clean
- My trash cans are empty
- The diapers get on the babies a lot more easily than they would if I did it the “right” way
- I have a number of completed projects that look exactly like “normal” crochet
- …Well, I’m not copying and pasting each word into this entry, am I? No signs of repetitive stress injuries either.
So the question is, what exactly am I doing wrong?
(In all fairness, the “walking wrong” thing was a choreographer. Oh, and various and sundry security guards with nothing better to do.)
Single-Sentence Saturday’s glasses got slobbered on today. October 4, 2008
Posted by speakingaut in interaction, language, single sentence saturday.Tags: autism, speaking
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It’s no wonder I like little kids: everybody else calls me “antisocial” when I don’t talk and wishes I would shut up when I do talk.
A somber Single-Sentence Saturday. September 13, 2008
Posted by speakingaut in media, single sentence saturday.Tags: autism, colorado, jacob grabe, murder, news
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I have nothing pithy, profound or even just bizarre to say today; instead, this sentence is for Jacob Grabe.